“She’ll be able to live independently… as long as I’m around”: The “lived” experience of parenting a child with 22q11.2 deletion syndrome in the transition to adulthood

Ítems similars

• Caregiver and adult patient perspectives on the importance of a diagnosis of 22q11.2 deletion syndrome
  per: Costain, G.
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• AUTISM SPECTRUM DISORDERS AND SYMPTOMS IN CHILDREN WITH MOLECULARLY CONFIRMED 22q11.2 DELETION SYNDROME
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• A longitudinal examination of the psychoeducational, neurocognitive, and psychiatric functioning in children with 22q11.2 deletion syndrome
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